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CF Newsletter Database

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | XYZ |

If you discover any link or phone number that is not working, please email us so that we may fix the problem and get you the resource information you are seeking. Thank you.

A

At Home -a free publication from Ortho-McNeil Pharmaceutical for CF patients & families -Call: 1-800-232-8773 or write CF Currents, PO Box 2147, Bristol, PA 19007-9510 or subscribe by visiting: www.cfcare.com

B

Breathing Easy -Florida Cystic Fibrosis Inc. -Ft. Lauderdale, FL. -Contact: Carolyn Shumway at 954-776-4274.

C

Cystic Fibrosis Alliance -320 Seneca Lane -Boca Raton -Florida 333487 -561-994-8674.

CF Life -a new newsletter published by Ortho-McNeil, maker of Pancrease and Pancrease MT (pancrelipase) capsules -news & views on cystic fibrosis -contact: Janis Kelly at 1-800-296-1542 or 1-800-356-3475.

CFRI News -published three times a year and distributed free of charge to friends of Cystic Fibrosis Research, Inc. -Call: 1-650-404-9975. (Phone number updated August 21, 2005)

CF Rountable -the newsletter for adults who have cystic fibrosis -Contact: cfroundtable@cysticfibrosis.com - send your subscription in today! -Write: USAFCA, PO Box 1618, Gresham OR 97030-0519 or call: 1-503-669-3561.

Circle of Friends -published twice each year, for CF adults, by the Canadian Cystic Fibrosis Foundation -a $15 donation is requested -for information contact Mike Burrill, 8 Murdock Avenue, Toronto, Ontario, Canada, M4C 1E4.

Commitment -free publication of the Cystic Fibrosis Foundation. For your online copy please visit the Cystic Fibrosis Foundation website. (Updated 5/11/06)

CyFi Express -a quarterly newsletter for teens and young adults who have CF -published by CyFi, Inc. -it is free to CF patients, others may subscribe for $10 a year -for information, call: 1-813-360-CYFI. (Phone number updated August 21, 2005)

H

Horizon -Cystic Fibrosis Clinic, Children's Hospital of Michigan, 3901 Beaubien Blvd., Detroit, MI 48201.

I

 

L

Life & Breath -published by the Lungs for Life Foundation. Sign up at the top of this page in the menu section. (Updated 9/11/06)

N

Newsline - The Federation for Children with Special Needs -contact: Carolyn Romano at 1-800-331-0688.

News Bulletin -Cystic Fibrosis of Erie County, PA. -contact: Kathy Cage at 1-814-825-4120.

R

Reaching Out Foundation -a newsletter for CF patients and their families, published three times a year by Susan Burroughs (a CF adult) -minimum $10 donation is requested annually -contact: Susan Burroughs at 1-404-381-2552.

T

The Informer -a free monthly publication from the Central Florida CF Support Group - 633 E. Colonial Drive, Orlando, FL 32803 -contact: Beverly Donelson, President at 888-307-4427 or 407-898-4427 -place an article by mailing in, or emailing Bev: bevd@hhcs.com.

W

West Coast Bay Area Cystic Fibrosis Support Group -17854 Jamestown Way, Lutz, Florida, 33549 -Jennie Shim at 1-813-968-6206.

 

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