For twelve years, the Lungs for Life Foundation (LFL), was a registered 501(c)(3) tax exempt, all-volunteer charitable organization dedicated to providing assistance funds to cystic fibrosis and lung transplant individuals and families.
Our primary goal was to provide necessary assistance* to meet the daily living and medical needs of those with cystic fibrosis, as well as, both pre -and post -transplant related expense needs. We improved their quality of life as they awaited a cure and we helped ease the burdens they faced as they battled their disease.
Our secondary goals were to provide education and research support, as well as, raise awareness.
There was no other successful charitable assistance model that existed like ours and we were proud to be the leaders in this breakthrough support model. We worked through our network of social workers and conducted fundraising events like the LFL Annual Yard Sale.
The Lungs for Life Foundation made a difference in the cystic fibrosis and transplant communities.
Although we are saddened to have to dissolve the charitable portion of the organization. We will remain a resource of information and support for both the cystic fibrosis and transplant communities. We will provide important links to cystic fibrosis information sites, transplant information sites, outside organizations, individuals and a host of other resources that share or further our cause(s).
Read what some of our past assistance recipients and social workers had to say about our programs:
*At this time, our assistance program extends only to U.S. citizens of the Greater Rochester Area (Genesee, Livingston, Monroe, Ontario, Orleans, Wayne and/or Wyoming County). We hope to re-open nationwide assistance at some point in the future.